Revelation Films
Revelation Films Boy whose skin fell off
- Jonny Kennedy is a man with a lot to do
- He's got just four months to move home
- BefriendNell McAndrew
- Fly a plane
- Visit Downing Street – and plan his own funeral
- 36-year-old Jonny is an extraordinary man with a terrible condition Dystrophic Epidermolysis Bullosa (EB) which means his skin literally falls off at the slightest touch
- Leaving his body covered in agonising sores and leading to a final fight against skin cancer
- In 2003
- Jonny decided to work with filmmaker Patrick Collerton to document his last months in an uplifting
- Confounding and provocatively humorous story of a singular man
